Stories & news
Real people. Real strength.
Stories from the movement and news about research, fundraisers and events.
-
Results of the needs assessment among patients with Collagen Connective Tissue Disorders
Working together on greater awareness: our needs assessment maps out valuable experiences and wishes.
-
Data as the key to new treatments
A hypothesis is all well and good, but ultimately you have to be able to demonstrate that it holds up in practice.
-
From Patient Perspective to Scientific Progress
Progress does not happen only in laboratories or meeting rooms.
-
Searching for potential treatments
What exactly can go wrong during collagen formation?
-
I stopped counting after a hundred fractures
Current care is still focused on managing symptoms.
-
Power Of Reflection – Run4All
Run4All is de 5KM run van stichting Power Of Reflection. Dan staan rollers en lopers samen aan de start en gaan we over hetzelfde parcours en gaan we…
-
Colour your Day – Community Day
That feeling of being understood. Being able to be yourself. Sharing good times and stories. You don’t have to explain anything, because we understand each other.
Your story makes the movement stronger
Do you live with a connective tissue disorder, or are you close to someone who does? Share your story and show the Netherlands what CBA means.