Together strong for everyone with a connective tissue disorder.
Together we are building a future with effective treatments for Collagen Connective Tissue Disorders.
In short
Connective tissue holds everything together. So do we.
A collagen-related connective tissue disorder affects the bones, muscles, joints, skin and blood vessels and therefore impacting every aspect of daily life. There is still no cure. That is why we take action: to advance research, improve treatment and make the Netherlands more accessible for everyone.
More about CBA
Zes collageentypen en meer ziektebeelden. Ontdek wat een CBA doet en waar onderzoek nu staat.
Get involved
Start a fundraiser, become a friend or donate. This is where it all happens.
30.000+
people with CBA in the Netherlands
23.000+
live with painful muscles
4.500+
have fragile blood vessels
4 in 10
are estimated to depend on a wheelchair
Our impact
From knowledge to change
We work along three lines towards a future in which people with a connective tissue disorder can live better lives.
Stories from the movement
“I want us not only to learn to live with these conditions, but also to keep searching for ways to treat and cure them."
— Cindy, living with the Collagen Connective Tissue disorder Osteogenesis Imperfecta
News and stories
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Results of the needs assessment among patients with Collagen Connective Tissue Disorders
Working together on greater awareness: our needs assessment maps out valuable experiences and wishes.
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Data as the key to new treatments
A hypothesis is all well and good, but ultimately you have to be able to demonstrate that it holds up in practice.
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From Patient Perspective to Scientific Progress
Progress does not happen only in laboratories or meeting rooms.
Vrijheid op Wielen
OI Nederland
Become part of the movement.
Donate, start a fundraiser or join a run. Together we make the Netherlands strong for connective tissue.